Tuesday, June 23, 2015

Rough Patch

I always say that Tate is an amazing little guy.  On Monday, Brian was eating some chips and dip that was leftover from Father's Day. Tate was sitting by him and asked him, "Daddy, does that have carbs?"  He wanted some and knew that he couldn't have carbs at that time.  ABSOLUTELY AMAZING!  HE IS 2! In the moment, I didn't know if I should feel proud or sad, and I actually felt both.  Proud that he is learning, and sad that he actually has to know things like that as a child.  It gives me a whole new perspective on life, learning, and what is expected of our children.  Mine might not know his numbers or letters or pee on the potty, but he knows to count carbs, to drink juice when he is low, and how to check his blood sugar.  He will go to school with an entire different life experience than his peers.

Rough Patch
We are in a bit of a rough patch right now.  He is healthy and doing fine, but has been running high now for too long and we are having trouble getting his levels down. We made some changes last week that didn't work.  Then more over the weekend that didn't work.  Then another one today.  Now he is running low.  This is the frustrating part.  It is such a roller coaster ride...up and down.  It is sometimes hard to find that middle, level, in range number that he needs.  So now what?  I have no idea....we will just keep adjusting things until we get it right.

We do have his pump now, but will not start using it until July 27th when we take the training class at Children's hospital.  Excited, nervous, and anxious about this.

Dexcom CGM is wonderful and gives us so much peace of mind!

Wednesday, June 10, 2015

Dexcom CGM

We FINALLY have Tate's Dexcom CGM (continuous glucose monitor)!  On Monday, we went to a 4 hour training (with Tate) to learn how to use it, and how to put it on him.  This shows how great he is!  We were at Children's from 1:15-5:30 in a little room learning all of this information.  It was his nap time, too.  He was so good.  It is really unbelievable.  When we put the CGM on him, he did cry while we iced his leg to help him not feel the sting.  Then he stopped.  We showed him the CGM, told him what it was for, and told him not to touch it or pull at it.  He hasn't bothered it at all.  He has shown a few people, and sometimes he will tell me to "be easy" when I am changing his clothes:)  He is nothing but amazing!

The CGM is awesome and I am a little obsessed with it.  It tells us an "approximate" glucose reading, but more importantly has an alarm setting for if he goes below 90.  It also tells us if he is going up or down and how quickly.  I LOVE IT!!!!!  Last night Brian and I both got to sleep through the night.  This was the first time in over 6 months!  We still have to stick his finger to get an exact reading before eating and before doing treatment of any kind.

We are so thankful for technology like this!

AND....the pump is coming soon!  Hopefully he will have it and be using it by the end of the summer!